Earlier this month, Growing Stronger attended the Rare Drug Development Symposium hosted by Global Genes and the Orphan Disease Center of the University of Pennsylvania.
This event equipped advocates with the knowledge, skills and connections needed to advance therapy development for their communities. This year, the focus was collaboration – the foundation of success in rare disease research.
As a parent-founded patient organization, we benefited greatly from attending this event from both a parent perspective and as an organization. Moving forward, we are taking what we learned and applying it to Growing Stronger and our community as a whole.