{"id":3566,"date":"2023-06-01T03:06:17","date_gmt":"2023-06-01T03:06:17","guid":{"rendered":"https:\/\/growingstronger.org\/?page_id=3566"},"modified":"2023-06-01T03:06:46","modified_gmt":"2023-06-01T03:06:46","slug":"rare-drug-development-symposium-2023","status":"publish","type":"page","link":"https:\/\/growingstronger.org\/ur\/about-us-2\/rare-drug-development-symposium-2023\/","title":{"rendered":"Rare Drug Development Symposium 2023"},"content":{"rendered":"
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Growing Stronger attends Rare Drug Development Symposium<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Earlier this month, Growing Stronger attended the Rare Drug Development Symposium<\/a> hosted by Global Genes<\/a> and the Orphan Disease Center of the University of Pennsylvania<\/a>.<\/p>

\u00a0<\/span><\/p>

This event equipped advocates with the knowledge, skills and connections needed to advance therapy development for their communities. This year, the focus was collaboration \u2013 the foundation of success in rare disease research.<\/span><\/p>

Sessions included:<\/p>

\u2022 Charting the Path to Treatments<\/a><\/p>

\u2022 Rare Research Roadmap<\/a><\/p>

\u2022 Understanding Data for Basic Research<\/a><\/p>

\u2022 New Technologies in Early Stage Research\u00a0<\/span><\/a><\/p>

\u2022 Intellectual Property: Balancing Stakeholder Rights<\/a><\/p>

\u2022 The Regulatory Landscape: Pathways, End Points, and Clinical Trials<\/a><\/p>

\u2022 Research Readiness<\/a><\/p>

\u2022 How Can the FDA Improve Process?<\/a><\/p>

\u00a0<\/p>

As a parent-founded patient organization, we benefited greatly from attending this event from both a parent perspective and as an organization. Moving forward, we are taking what we learned and applying it to Growing Stronger and our community as a whole.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"

Growing Stronger attends Rare Drug Development Symposium Earlier this month, Growing Stronger attended the Rare Drug Development Symposium hosted by Global Genes and the Orphan Disease Center of the University of Pennsylvania. \u00a0 This event equipped advocates with the knowledge, skills and connections needed to advance therapy development for their communities. This year, the focus […]<\/p>\n","protected":false},"author":6,"featured_media":0,"parent":2993,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-3566","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/growingstronger.org\/ur\/wp-json\/wp\/v2\/pages\/3566","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/growingstronger.org\/ur\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/growingstronger.org\/ur\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/growingstronger.org\/ur\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/growingstronger.org\/ur\/wp-json\/wp\/v2\/comments?post=3566"}],"version-history":[{"count":2,"href":"https:\/\/growingstronger.org\/ur\/wp-json\/wp\/v2\/pages\/3566\/revisions"}],"predecessor-version":[{"id":3569,"href":"https:\/\/growingstronger.org\/ur\/wp-json\/wp\/v2\/pages\/3566\/revisions\/3569"}],"up":[{"embeddable":true,"href":"https:\/\/growingstronger.org\/ur\/wp-json\/wp\/v2\/pages\/2993"}],"wp:attachment":[{"href":"https:\/\/growingstronger.org\/ur\/wp-json\/wp\/v2\/media?parent=3566"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}